The explosion in the use of the Internet has spawned numerous patient support and self-help groups for a variety of medical conditions. On the Internet, many group sites are hosted in the United States and most are only available to English language speakers. Some sites additionally offer remote diagnosis and patient consultations.

There are a number of sites which are specifically focused on cerebral vascular diseases and disorders. These sites often provide patient information and self-help groups for patients affected by cavernous malformations or cavernomas.

Cavernoma.com is a website which provides a forum exclusively for cavernoma patients and their family and friends. The site has been developed by a small group of Europeans all of whom have been directly or indirectly affected by cavernoma. Because we are Europeans, we are able to offer a choice of languages. The choice currently is English, German, Dutch and Norwegian.

Click on What Is It? to read more about cavernoma as a medical condition. The  Discussion Group provides a place where you can ask questions or join in the debate about cavernoma. You can read about other people's experiences in  Patient Stories. Indeed, we would be delighted to receive your story! Please send us any anecdotes or other information relating to your own experience of cavernoma.

Sources of additional information can be found in  Useful Links. Finally, you can find out more about the people who built this website in About Us.

We look forward to hearing from you!